Mesothelioma patients and families can access support for the emotional, financial, and other difficulties that come with a diagnosis. Mesothelioma support options include in-person groups, VA benefits, end-of-life care, and more. Learn more about accessing support for mesothelioma.
Types of Support Available for Mesothelioma
Dealing with a mesothelioma diagnosis is never easy, but taking advantage of support resources can help ease the burden.
Video Summary: Registered Nurse Amy Fair discusses the emotional stages that a patient may go through after getting a mesothelioma diagnosis. View Transcript.
I’ve been diagnosed with mesothelioma, now what?
When someone’s first diagnosed with mesothelioma it’s not uncommon for them to go through the same stages that one goes through with a cancer diagnosis, because mesothelioma is a cancer. Fear, anxiety, and at one point they’ll go through acceptance. But, all the stages are very important to go to just to get through to the acceptance point. All those other unfortunate feelings such as fear and anxiety are part of the process.
Mesothelioma support comes in many forms:
- Support groups: Support groups can help patients and families find hope from others affected by this devastating cancer.
- Family support: Family members struggling to watch their loved one battle cancer may benefit from mesothelioma support groups designed for family and caregivers.
- Veterans support options: Veterans with mesothelioma can access financial and medical benefits through the U.S. Department of Veterans Affairs (VA).
- Other forms of support: In-home nurses, hospice care, financial resources, and travel services can help mesothelioma patients get the care they need.
Patients and families can access these support resources to reduce stress, afford medical care, and feel less alone after a mesothelioma diagnosis.
Mesothelioma Support Groups
Veterans and their families can search for in-person and online mesothelioma support groups to help them cope with the difficult feelings that often accompany a mesothelioma diagnosis.
While mesothelioma has unique challenges, general cancer support groups are far more common and provide many of the same benefits of a mesothelioma-specific group.
Local Support Groups
In-person mesothelioma support groups offer a more personal connection than phone or online groups. These local groups will likely be made up of people who are being treated at the same cancer center.
Some local support groups include:
This is an in-person support group for patients who have just been diagnosed with mesothelioma. The group is led by doctors, social workers, chaplain staff, and researchers.
CancerCare is an organization that provides various support services to cancer patients and their caregivers, including in-person support. While they operate out of New York, they can also help you find face-to-face support in your area.
This non-profit organization provides patients and their loved ones with care information and a support network. They have over 170 locations nationwide and tailor support to your needs, whether it be in-person, online, or over the phone.
Phone Support Groups
With phone support groups, travel is not necessary, and you can still get a sense of connection from speaking directly with others in real-time.
Depending on the phone support group, you can either speak with several group members at an appointed time or have one-on-one calls.
Some phone support groups include:
A general helpline for those who have cancer, this resource offers a toll-free 24/7 phone number for information and support.
This cancer support community is composed of volunteers who are cancer survivors and offers one-on-one support via phone, text, email, or in person.
Online Support Groups
Online mesothelioma support groups offer anonymity and flexibility while still giving participants a sense of community. With tools like social media, finding online mesothelioma support groups has never been easier.
Online mesothelioma support groups include:
- Cure Mesothelioma: A public Facebook group by the Mesothelioma Applied Research Foundation (Meso Foundation) for anyone affected by or seeking to help those with mesothelioma
- Warriors Voices: A private Facebook group for mesothelioma patient support
- Caregiver Conversations: A private Facebook group for mesothelioma caregivers